Goodnight, Sleep Demon
This is a submission in our monthly contest. October’s theme is Determination.
“My stomach hurts.” “I can’t sleep;” “Can you close my closet?” “Can I just sleep with you?” Sound familiar? You are not alone – and neither is your child. Obviously all children have times of anxiety when leaving their parents, or meeting new people, or going to a sleepover for the first time. Most will even go through a period of wanting to sleep in your room. But most toddlers or young kids grow out of that. What they don’t generally do is stay awake all night long, miss school, throw random tantrums about leaving you; or turn down sleepovers with their close friends. What they don’t generally do is bring that anxiety into the school years. They also don’t spend two years trying to sleep in their own bed, alone in their own room, but just being incapable of it. Seriously. Approximately 12 percent of children suffer from separation anxiety disorder before they reach 18. While that’s not a huge amount, it’s enough that it should be talked about, highlighted. There should be information out there for parents to know what’s typical and what isn’t. You know what to look for in the flu, but where’s the document about anxiety, or Anxiety – and the differences between them. I wish i had clued into any of the telltale signs before I did. But honestly I didn’t know what those signs were. All my friends had kids who had had some trouble sleeping. And when you are living through it, it feels singular; like you alone are battling these ever-elusive sleep demons. For a while I traveled a couple of days a week for work – and my leaving was excruciating. It was also excruciating when I called home and could barely understand anything being said through enormous fits of tears and “Come home, Mommy; please come home.” It broke my heart. My husband was hassled, frustrated, and downright cranky: Trying to get her to school was anything but pretty in the mornings I was away. I felt enormous guilt and was torn between trying to calm and comfort Carrie or telling her to just suck it up and go to school. I often hung up in tears myself. But I comforted myself. I just thought “ this too shall pass”. That all changed one day when my daughter’s kindergarten teacher saw me dropping her off and said “oh it’s so great having you home – no more tummy aches.” EXCUSE ME?? That was the first I had heard of those apparently daily events. The fact that they disappeared when I was home was clearly a sign that she was distressed. Carrie had worried I would get hurt or die in an airplane, or not come home, or any number of things all the time. But we didn’t know that – she didn’t have the words to tell me, was too scared to say it, and Dave and I didn’t stop to ask the right questions. Things improved when I was home more often. There was continuity, I was clued into her sensitivity and she felt safe. So again, I wasn’t too concerned. She went to school just fine, she liked her teachers, had friends, and had fun. She was actually back to being a bundle of joy, laughter, and creativity. Until she wasn’t. You know that story of when he was good he was very, very good, but when he was bad, he was terrible? Well, let’s just say I do too. Carrie started to turn down play dates – or would only have them at our house. She wanted to only play one on one; she said she felt like a prisoner at school, and she was always worried. She needed to know what the plan was and when it changed? Then watch out – tantrums like crazy came on. Inconsolable tears; fits where she would straighten her back and not get into the car to save her life. She stopped going to sleep overs, or would go but have to be picked up in the night – and believe me, that was not good for anyone. And then, after years of sleeping just fine in her own room, she stopped. Just stopped. At first we thought she must have had a bad dream the night before or something. But it kept going. Night after night, we would check her room and closet for bad guys and people that might want to hurt Mom. She couldn’t sleep because what if there was a fire? What if someone broke into the house; what if she was kidnapped? Or worse, what if her brother was? Clearly something was off. There was no talking logic to her and there was no sleep for any of us. So when we were beyond ourselves with exhaustion and frustration, we found a counselor and had her start seeing someone to talk to and work through the fears. But now on top of the no sleep, the stomachaches were back; and panic attacks going to school were starting. Carrie was seriously struggling. Unfortunately, by then we were all struggling. Dave couldn’t understand that for Carrie these issues were completely real. Their conflict, the stress and walking on eggshells to keep the peace was taking a toll. Our efforts to calm her or use reasoning were completely ineffective. Sick of the arguing and tears, we tried letting her sleep with us for a very little while. Wrong choice! So wrong. Then no one slept because the bed was too small and she thrashed around all night. Finally, counselor number two suggested we try something different: put an extra bed in her room and one of us sleep there. That was step one – get her to sleep in her own room again. Eventually, it worked; she got some sleep. Me? Not so much. Step two was that once she fell asleep, we then returned to our bed. That worked ... until she woke up, saw we weren’t there anymore, and started screaming. Or woke up from a nightmare. Back one of us went. By then we were so tired ourselves that we might fall asleep in her room before she did – thereby not affecting any change in the right direction. A tired mom is a short-tempered mom. A tired dad might be even worse. The house that was once so joyful and peaceful was now filled with angst, anger, and just plain exhaustion. I wasn’t sleeping; my husband fell asleep in her room confounding the issue. So then we were tired and at odds. Add to that an older brother who was tired of all the fights and of his sister being such a nightmare. Everyone’s patience had dissolved long ago and family dynamics hit a new low. Clearly we needed more help and so did she. By now we had tried all of the tricks to solving this issue. Gentle bedtime routine? Check. Regular bedtime? Check. Warm bath; stories; snuggles? Check, check, and check. We encouraged rituals that soothed her – gave her her blanket and favorite stuffy. We tried meditation, soft music and then white noise when that didn’t work. She read. We read to her. You name it, we tried it. At this point we realized she had some serious Anxiety and we were well beyond our abilities to solve the issue. So we found a new therapist to help us face this sleep demon. Our new therapist was great – Carrie really took to her and looked forward to seeing her and, I think, to having someone of her own to talk to. One of us was still staying in her room at this point. We again tried leaving after she fell asleep. More tears. Then the doctor suggested a more gradual approach. After getting her to bed and completing our nightly, calming rituals, we (one of us) sat in her room. Not on a bed, not lying down. Sat in a chair so we would not fall asleep. Which, if I’m honest, had it’s own issues, but still. When she fell asleep, we were supposed to move to the hallway and sit there. Slowly, ever so slowly over many nights, we moved a little farther away within the room, then into the hallway, then further down the hallway, until finally we made it to our own bedroom. So how did our new therapist help? A few ways. She had Carrie talk about her fears and give voice to them. Apparently that sounds way easier than it is. The Anxiety that Carrie felt also meant she had had a hard time voicing or admitting to the scary thoughts. So her therapist had her look at What Ifs. She talked about those What Ifs. Then Carrie would tell me about them so I could help her at home. For instance if she brought up a fire, we could lead her through that. “Have you ever had a fire or known anyone who did? If not, was there a reason her house might get one? Did anyone smoke or leave on the gas? No, well then was it possible no fire would happen?” Same with a burglar or an airplane trip – or whatever; we learned to walk and talk her through her fears. Which sounds good and is a great starting point. But of course that alone didn’t do it, as this Anxiety is not rational. Another helpful tip was having her picture her fear and describe it. Then draw it and name it. That helped put some distance between the fear and her. Plus we could use humor and come up with ways for her to yell at it or tell it to go away; we were able to make it a little, tiny bit fun and less scary. Sometimes I had her draw her feelings and we’d throw the drawing away or burn it so it couldn’t come back. Another winner? While we had tried relaxation and meditation apps (didn’t work for her) her therapist taped her own soothing voice in a little meditation for Carrie. Reminded her what to do, how to relax, how to help herself. We had her play that in her bed when she was experiencing a tough night. And as we got one night of sleep, it went to two, then maybe back a step – but eventually we were able to have enough success that she set up her own goal and reward system. She would choose how many nights she would stay alone and if she was successful, what fun thing we would do. It became hers; she controlled it. She was sad, mad and therefore determined to banish it. Thank God for her stubborn streak at those moments. Lo and behold, it took. She realized she could make the sleep demon disappear all on her own. She owned it and she conquered it. And eventually, she even went on a successful sleepover again. Last week she came back from three weeks away on a service trip where she didn’t know anyone. That is a beautiful thing.